Join DE Family Voices At Our Open House!

June 19, 2013

Delaware Family Voices is hosting an Open House on Tuesday, June 25th, 2013. Join us for a day of snacks, fun, information & networking. Take a tour of our new office space, meet and get to know our staff, and how we can help families.

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Everyone is welcome! We encourage families and professionals alike to stop by and get to know all we have to offer.

DE Family Voices Open House Details:

When: Tuesday, June 25th

Time: 11:30am-4:30pm

Where: 222 Philadelphia Pike, Suite 11, Wilmington, DE 19809

Please use outside entrance (Facing Giorgi Kitchens).

For further assistance with directions, please call Delaware Family Voices at (302) 669-3030

If you have old Delaware Family Voices brochures, kindly bring them with you. We will swap them out for new brochures that reflect our new address and phone numbers.

We hope to see you on Tuesday!

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Delaware Family Voices is a 501 C3 Non-profit organization. Consider Donating to our organization and help support Delaware families in need.

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Delaware Family Voices Launches New Website!

June 13, 2013

It’s a whole new look for Delaware Family Voices online. Check it out!

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A New Design, A Valuable Resource

The Delaware Family Voices redesigned website has made it’s debut. This new and improved website is a treasure trove of information and resources on a wide variety of topics important to you and your family. Find helpful links, valuable resources, and tips of all kinds, all right at your fingertips. Website pages include:

The new website also includes dedicated online request for information options for each of our Programs, making it even easier for you to contact us with your specific needs.

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Bookmark the website, then check back frequently for fresh, new and relevant information.

Helpful information is all around us. If you have a resource you think we should consider including on the website, let us know. Help us help others!

We are confident you will find the new Delaware Family Voices website a valuable resource, but if you do find an error or a link that doesn’t work, please let us know. Launching a brand new website is lots of work, and we are still tweaking and fine-tuning the website.

So come on over, stop by, check out the new website, and get to know this valuable resource.

Our Website Is Your Website

Would you like to share your story about how Delaware Family Voices helped you? Let us know! The website includes a whole new feature dedicated to our families. Leave us a message if you would like to take part in a photo or video display that will be featured on the website. More details will follow shortly about this exciting volunteer activity.

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We encourage family involvement in all our projects, including the website. And remember – Delaware Family Voices is here to help you with your medically complex child’s health care and behavioral health needs. Call us with your questions.

So what do you think? Do you like our new online home? Let us know in the Comments section below. We’d love to hear from you.

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Delaware Family Voices is a 501 C3 Non-profit organization. Consider Donating to our organization and help support Delaware families in need.

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Delaware Family Voices Is Moving!

May 30, 2013

Big news!

We’ve outgrown our office space so we’ve packed our boxes and are moving into a larger office. Our new address is:

222 Philadelphia Pike, #11

Wilmington DE 19809 

We also have new phone numbers – 302-669-3030, 3031, 3032, 3033, 3034, and 3035.

Our 1-800 number remains the same at 877-235-3588. Our email addresses, website and blog also remain the same.

We are checking our voice mails from the existing phone numbers (302-221-5360, 5361, 5362) and will return calls as soon as we can.

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Please bear with us if we are slow to respond to email or phone calls. Moving is lots of work. So is unpacking our boxes!

Thank you for your patience.

Stay Tuned!

We will be hosting an open house as soon as we’ve settled into our new office. We hope you will take this opportunity to stop by, tour our new space and talk in person with the Delaware Family Voices staff. We’ll let you know as soon as we set the date.

A New Website Is On It’s Way!

Lots of news happening for Delaware Family Voices! We are also working on a brand new and improved Delaware Family Voices website.

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It will be coming your way shortly. When it does, be sure to bookmark the site. It will be a treasure trove of information and resources on a wide variety of topics important to you and your family. Check back frequently for fresh, new and relevant information.

Helpful information is all around us. Send us information that you’d like to see posted on the website, information that might help others.

Share Your Story With Us!

Would you like to share your story about how Delaware Family Voices has helped you? Let us know! Our new website will include a whole new feature dedicated to our families. Leave us a message if you would like to take part in a photo or video display that will become a part of the website. More details will follow shortly about this exciting volunteer activity.

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We encourage family involvement in all our projects, including the website. And remember – Delaware Family Voices is here to help you with your medically complex child’s health care and behavioral health needs. Call us with your questions.

Please leave us your comments in the Comments section below. We’d love to hear from you.


Rita’s Water Ice Supports National Children’s Mental Health Awareness Day

May 6, 2013

This Thursday, May 9th is National Children’s Mental Health Awareness Day 2013. Join the Delaware Division of Prevention and Behavioral Health Services, Rita’s Water Ice, and Delaware Family Voices in showing your support for kids with mental health issues and their families. Get a yummy free scoop of Rita’s water ice, too!

Get The Free Scoop At Rita’s On May 9th

May_RitasSamshaRita’s Water Ice is partnering with the Delaware Division of Prevention and Behavioral Health Services on May 9 to spread awareness of children’s mental health issues.

Stop by a Rita’s Water Ice near you between 6:00 pm and 8:00 pm, and receive a free scoop of water ice. Participating Delaware Rita’s Water Ice locations will have on hand information about children’s behavioral health as well as coupons for a free scoop of your favorite Rita’s water ice. Yum!

Jurdy, the anti-bullying mascot will also make appearance at several Rita’s locations. You never know where he might show up!

Stop By The Delaware Family Voices Table

Delaware Family Voices staff members are hosting a resource table during the event at the Rita’s location on Rt. 202, Concord Pike, North Wilmington. Stop by and say hi. See how we can help you or someone you know who has a child with behavioral health concerns or special health care needs.

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Participating Rita’s Water Ice Locations

This Thursday, many Delaware Rita’s Water Ice locations will show their support for Children’s Mental Health Awareness Day. Find a participating Rita’s in your neighborhood and come on down between 6:00 pm and 8:00 pm. Show your support for children’s mental health issues, and get a free scoop of your favorite Rita’s water ice.

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Hope to see you there!


Next Parent To Parent Workshop Is Almost Here!

April 30, 2013

Are you the parent of a child with diabetes, a chronic respiratory condition, or a chronic cardiac condition? Would you like to help other families with similar chronic medical issues?

Consider training to become a Support Parent and be a part of a network of families supporting families. Learn how to effectively share your knowledge and experience to help support other families who are dealing with similar situations.

Help Others – Become A Support Parent!

Delaware Family Voices (DEFV) is the only organization in Delaware approved by Parent to Parent USA  to participate in the national Parent to Parent program. Through Parent to Parent Workshops, we provide the training and skills necessary to become a Support Parent.

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Once trained, Support Parents are then matched with families with similar circumstances. Support Parents help these families by providing them with emotional support and guidance as they navigate their child’s diagnosis. Learn more about the program through the following three resources: Introducing The Delaware Parent Partners ProgramHelp Us Help Parents Become A Parent Partner, and Parent to Parent USA.

Don’t Miss Our Next Parent to Parent Workshop!

Delaware Family Voices’s next Parent To Parent Workshop is just around the corner. Register now and learn more about the Parent To Parent program and how you can become a Support Parent.

When: Tuesday, May 7th
Time:  9am – 2pm
Where: Easter Seals Building- 61 Corporate Circle New Castle, DE 19720

A light lunch will be provided and child care reimbursement is available.

Kindly RSVP by May 3rd  to Ann Phillips at (302) 221-5360 or annp@defv.org. Class size is limited.

Please call Delaware Family Voices at (302) 221-5360 with any questions.

Hope to see you at the workshop.

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Delaware Family Voices is a 501 C3 Non-profit organization. Consider donating to our organization via United Way #12691.

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Image from Parent to Parent USA.


Go Green With The Blue Rocks And Support Children’s Mental Health

April 24, 2013

Mark your calendars! Sunday, May 19th, is Wilmington Blue Rocks Go Green for Children’s Mental Health Day at Frawley Stadium, sponsored by Delaware’s Division of Prevention and Behavioral Health Services.

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Make plans now to attend the game. Proceeds from tickets bought through the Go Green for Children’s Mental Health promotion will be donated to the Delaware chapter of Federation of Families, a family run organization that supports and promotes children’s mental health.

Learn more about how the Delaware chapter helps families with mental health concerns at Federation of Families Is Coming To Delaware.

So join us at the game for loads of family fun as the Blue Rocks face off against the Myrtle Beach Pelicans. Be sure to wear green and show your support for children’s mental health issues.

Blue Rocks Go Green Game Day Details:

Blue Rocks Go Green for Children’s Mental Health game day details are:

Date – Sunday May 19th, 2013
Where – Frawley Stadium, Wilmington DE
First pitch – 1:35 pm
Cost – $9 per ticket
Call - (302) 888-2015 for tickets.

NOTE: Tickets must be purchased directly from the Blue Rocks box office to receive the special group rate of $9, and to have a portion of the ticket proceeds donated to our local Federation of Families chapter. When requesting game tickets, ask for tickets from the Go Green for Children’s Mental Health promotion. Buying tickets through the website will not count towards the Go Green initiative.

May 19th Is Blue Rocks Sunday Fun Day!

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Sunday May 19th is also Sunday Fun Day at Frawley Stadium. That means fun for the whole family. Fans of all ages can participate in a pre-game child-parent catch on the field, get their favorite players’ autographs, and after the game ends, all kids are invited down to the field for a post-game run around the bases.

Check out the rest of the action happening this Sunday:

  • The first 1,000 fans will received free green t-shirts from Delaware’s Division of Prevention and Behavioral Health Services (DPBHS).
  • Phineas & Ferb will be making an appearance at the game. You just don’t know what antics they might be up to!
  • May is Physical Fitness Month. The Blue Rocks and Frawley Stadium show their support by hosting their first annual Health and Fitness Expo Day.

We hope to see you at the ball game! Don’t forget to wear green. Show your support for children’s mental health.

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Delaware Family Voices is a 501 C3 Non-profit organization. Consider donating to our organization via United Way #12691.


2013 Summer Camps For Special Needs Kids

April 18, 2013

Choosing what summer camps your child might attend can be a daunting task for any parent. It can be even more daunting if you are the parent of a child with special needs or chronic medical issues. How do you know if that camp is prepared for your special needs child? Will they be able to react appropriately if your child has a melt down, or is in need of medical attention?

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We want our children to have that summer camp experience in a safe, nurturing environment. Yet finding the just the right camp for a child with special health, behavioral or emotional needs, can be a challenge. To help you find a summer camp that’s right for your child, we have compiled a list of summer camps in the Delaware area that specialize in many of the complex health and emotional issues our children face.

Special Camps for Special Needs Children

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Camp Fairlee Manor

Camp Fairlee Manor is for children and adults with physical disabilities and/or cognitive impairments. Camp activities include arts and crafts, sports and games, nature walks, swimming, fishing, high/low ropes courses and canoeing. Located near Chestertown, Maryland, Camp Fairlee Manor is a fully accessible setting, ensuring children have full access to camp activities and programs.

Camp Fairlee Respite Camp

Camp Fairlee Manor Respite Camp is a weekend-based year-round camp for children and adults with the most involved physical, emotional, cognitive and behavioral disabilities, including some medically-fragile individuals. The number of campers are fewer than those that attend the residential camp in order to meet extensive personal needs.

Camps Lenape And Manito

Run by the United Cerebral Palsey of Delaware, Camps Lenape and Manito are open to children and young adults (ages 3-21) with orthopedic disabilities as well as children without disabilities. Both campsites have paved walkways for easy access by wheelchair as well as a swimming pool with an accessible in-pool ramp. Through traditional camp activities like swimming, arts and crafts, music, nature and sports, camp counselors promote independence and self-esteem, helping to build self-confidence in campers with disabilities. This year’s camps will weekly from July 1st to August 9th, 7:00am to 6:00pm.

Children’s Beach House Summer Camps

Located on the Delaware Bay, Children’s Beach House Summer Camps provide a unique experience for children with special needs. Campers’ activities include swimming, sailing, kayaking, arts and crafts, nature, and more. Camp staff modifies activities to encourage all campers to participate at some level of success, thereby building self confidence. Contact the organization for exact camp dates.

Camp Victory

Camp Victory is dedicated to providing a camp experience for children who live with chronic health problems, physical or mental disabilities, or the aftermath of catastrophic illness. Children attending Camp Victory have many and diverse special needs, including complex medical treatments. Camp Victory is planned and built to support all such needs. Check the Camp Calendar for the different types of camps offered. Camp Victory is located in Millville PA.

Mary Campbell Center Summer Camps

The Mary Campbell Center offers two week camp sessions from June to August for children with special needs between the ages of 3-21 and their siblings. Activities include field trips, swimming, games, arts and crafts, and cooking. Teamwork is stressed through out every activity. All camps are at the Mary Campbell Center in Wilmington DE.

Camp Lee Mar

Camp Lee Mar is an overnight camp for children with mild to moderate learning and developmental challenges. Campers can participate in traditional summer camp activities in a structured environment. The camp also offers speech and language therapy, adaptive athletic program, vocational training and therapeutic horseback riding. Camp runs from June 22 to August 9, and is located in Lackawaxin, PA. Financial assistance might be available.

DragonFly Forest Summer Camps

DragonFly Forest Summer Camps provide an overnight camping experience for children with Autism and complex medical needs. Campers enjoy a wide variety of camp activities in an environment that is safe and equipped to meet a variety of physical, medical and psychological needs. Sessions include Autism, Chromosome 22q11.2 Deletion, Respiratory/Asthma, and Sickle Cell Disease.Check the website for specific dates and camp details.

 Camp Sequoia

Camp Sequoia is an overnight summer camp for boys ages 8-17 who need help developing their social skills. The camp’s innovative program integrates Michelle Garcia Winner’s Social Thinking framework to help campers build their social thinking skills through an active, traditional camp program. Most campers are diagnosed with ADHD. Campers also include boys with social anxiety, learning differences which affect social skills development, as well as boys who may not have a formal diagnosis yet present with social learning needs.

Camp Sequoia fills an unmet need in the overnight camp market for children and teenagers who do not need the level of support offered at special needs overnight camps, yet need more than a what traditional overnight camp can offer. Camp Sequoia is located at The Perkioman School, Pennsburg PA, and runs from June 29 – August 11.

Speech Clinic Camp

The Speech Clinic Summer Camp is for children ages 3-5 who have been diagnosed with or are suspected to have speech-language or social/pragmatic language needs. Camps run from June 18  through August 1st in Hockessin DE.

Autism Spectrum/Aspergers Camps 

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Camp Fairlee Manor

Camp Fairlee Manor now offers two sessions dedicated to children ages 6-21 who are on the Autism Spectrum. Campers can safely enjoy canoeing, swimming, high ropes course, rock wall climbing, camping, fishing, horseback riding, and so much more. The Camp includes one-to-one counselor to camper ratio, is staffed with a nurse 24/7, and includes a sensory room. Autism camp weeks are June 16-21st and July 28-August 2.

The Explorer’s Club Summer Camp

The Explorer’s Club Summer Camp is designed for children with Aspergers, Autism and PDD between the ages of 4 and 18. Campers will work on social skills and independent living skills while enjoying lots of fun summer camp activities. The camps run from July 29 to August 30 in Wilmington DE.

Specific Camps For Specific Health Issues

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Diabetes – Kamp For Kids

Kamp For Kids: Diabetes and You is for children with diabetes and their siblings and friends. The camp’s goal is to assist campers to better understand diabetes and to live a healthy life. Campers will learn about health and wellness through fun and exciting activities. Kamp for Kids is for children ages 4-14, and will be July 22-26 at the University of Delaware’s Newark campus.

Diabetes – Camp Possibilities

Camp Possibilities is a camp for children with diabetes between ages 8-15. Campers can experience swimming, fishing, arts and crafts, sports and other activities in a safe environment. Camp Possibilities will be July 28th to August 2nd at Camp Ramblewood, Darlington, MD.

Down Syndrome – Camp PALS Philadelphia

Camp PALS Philadelphia is for young adults with Down syndrome between the ages of 13-18. Each camper is paired with a counselor with whom they will room and travel with throughout the week. Camp will focus on fostering independence in all campers, and will be June 16-22 at Cabrini College, Radnor PA.

Visually Impaired - Camp SunnyBrook

Camp SunnyBrook for The Blind is a six-week long summer day camp for blind and visually impaired children living in either New Castle or Kent Counties. Campers will experience swimming, arts and crafts, nature programs, music, field trips and more. All activities are adapted for blind and visually impaired children. Contact the organization for full details, including dates.

Asthma - Asthma Camp

Asthma Camp is a week-long day program for Delaware children ages 7-11 with asthma. A full medical staff will be onsite during the camp to ensure all campers can enjoy their week. Activities include arts and crafts, outdoor activities, and nature explorations. Asthma Camp Lewes will be July 15-19 at the Virden Center. Asthma Camp Wilmington will be 24-28 at A.I. duPont Hospital for Children.

Spina Bifida - Camp Spifida

Camp Spifida offers lots of exciting activities for children ages 6 to 18 who have spina bifida. Campers will enjoy crafts, fishing, swimming, dancing, paddleboats, campfires, hayrides, woodworking, a challenge course, and a 26 foot high climbing wall. Camp is fully staffed with medical personnel throughout the week. Camp will be at Camp Victory, Millville PA, July 21-26th.

Hearing Impaired – Deaf Camps Inc.

Deaf Camps Inc provide fun, safe communication-rich camps for deaf and hard of hearing children and children learning American Sign Language, between the ages of 8 and 18. Deaf Camp is the first full week of August and is located in Knoxville, MD.

Traditional Summer Camp Programs

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Don’t forget to also check with more traditional camps such as Boys & Girls clubs, YMCA, local county/city recreational programs, and boy/girl scout camps. They may be able to work with your special needs child, giving him an opportunity for social inclusion. Be sure to thoroughly discuss your child’s special needs as well as your expectations of the camp before you commit. This can help ensure your child has the best overall possible camp experience.

Check the National Dissemination Center for Children With Disabilities page, Camps for Children With Special Needs, for other camps not mentioned here, or for camps in other geographic locations.

Do you have a summer camp that you’d like to recommend? Please let us know in the comments section below. Share your tips on why you think that camp is special.

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Images from the following websites: The Explorers Club, Camp Manito, DragonFly Forest, University of Delaware Kamps for Kids, YMCA Brandywine Valley.

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Delaware Family Voices is a 501 C3 Non-profit organization. Consider donating to our organization via United Way #12691.


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