The Affordable Care Act – What Does It Mean For Families?

October 9, 2012

On March 23, 2010, President Obama signed into law the Affordable Care Act (ACA), putting into place comprehensive health care changes that were scheduled for implementation over the next four years. Almost immediately, ACA provisions began phasing in, despite court challenges to the ACA.

In June 2012, the U.S. Supreme Court upheld nearly all of these ACA changes, allowing existing provisions to remain in effect, and the remaining provisions to continue to be phased in through 2014. For a complete list of Key Features of the Affordable Care Act, By Year, click on this link.

The ACA and Families of Children with Special Health Care Needs:

Many ACA-required changes affect families of children with special health care needs. Listed below are key ACA provisions that directly affect families with children, as well as when these provisions became, or will become, effective.

ACA Provisions Already In Effect:

Pre-existing Conditions The ACA prohibits insurers from denying coverage to children under age 19 because of a pre-existing condition. (Effective since September 2010)

Maintaining Coverage for Young Adults This ACA provision allows parents to keep their adult children on a parent’s insurance plan until the child reaches age 26, unless the young adult is offered insurance at his/her employment. (Effective since September 2010)

Denying Coverage Based on a Technicality Insurance companies can no longer rescind coverage due to errors or other technical mistakes on a customer’s application. Some insurers have used such technicalities to deny coverage to individuals who had become ill. This practice is now illegal. (Effective since September 2010)

Providing Free Preventative Care All new plans must cover certain preventative services without charging a deductible, co-pay or coinsurance. Covered services for children include screenings for autism, blood pressure, cervical dysplasia and hearing, as well as behavioral assessments.  Click on this link for a complete list of covered services. (Effective since September 2010)

Eliminating Dollar Limits on Lifetime Essential Benefits The ACA prohibits insurance companies from imposing lifetime dollar limits on essential benefits such as hospital stays. Insurers have also been restricted from putting annual dollar limits on coverage of essential benefits in all new plans. (Effective September 2010)

Increased Access to Home Care Since October 1, 2011, the new Community First Choice Option has allowed states to offer home and community based services to people with disabilities through Medicaid rather than only offering institutional care in nursing homes. (Effective since October 2011)

ACA Provisions Scheduled for Implementation in 2013 and 2014:

Two Additional Years of Funding for the Children’s Health Insurance Program (CHIP) Effective October 1, 2013, states will receive two additional years of funding under CHIP for the express purpose of continuing insurance coverage for children ineligible for Medicaid due to their parents’ income.

Prohibiting Discrimination Due to Pre-Existing Conditions or Gender Effective January 1, 2014, insurers will be prohibited from denying coverage for anyone with a pre-existing condition or because of gender, regardless of age. They will also no longer be able to charge customers additional fees due to a pre-existing condition.

Eliminating Dollar Limits on Annual Essential Benefits Effective January 1, 2014, the law will expand from no lifetime limits (implemented in Sept. 2010) to include no annual limits to the amount of coverage for essential benefits an individual may receive, and will be effective for both new and existing plans.

Preserving Insurance for Those Enrolled in Clinical Trials Effective January 1, 2014, insurers will not be allowed to drop or limit coverage because an individual chooses to participate in a clinical trial to treat any life threatening disease including, but not limited to, cancer.

Summary: The ACA provisions guarantee that no child can be denied coverage due to a pre-existing condition, either temporary or permanent, and that similar protection will apply to adults by 2014. All children, regardless of health status, can remain on their parents’ insurance plans until age 26 unless the child can obtain coverage through his/her own employer. Dollar limits on annual and lifetime essential benefits coverage cannot be put into new policies and will be removed from existing policies. Rates cannot be raised based on an individual’s gender or health status.

If you have additional questions about the ACA and it’s impact on your family, or want more information, contact Delaware Family Voices at 302-221-5362.

For a full timeline of the ACA’s provisions, visit’s What’s Changing and When Timeline for ACA Changes.


U.S. Supreme Court Upholds The Affordable Care Act

July 11, 2012

What’s next for children with special health care needs?

In a 5-4 decision, the U.S. Supreme court upheld the constitutionality of President Obama’s healthcare reform law, the Affordable Care Act.

Several outcomes from the ruling include:

The provisions that have already been implemented, including prohibiting pre-existing condition exclusions for children under age 18 and allowing adult children to stay covered under their parent’s health insurance until they turn 26, remain in effect.

Those provisions scheduled to roll out over time will proceed as planned, with the exception of the Medicaid expansion.

The Court also ruled that states could not be compelled to participate at the risk of losing all federal funding for their Medicaid program. The expansion is now optional.

The Catalyst Center has identified three essential components of the ACA ruling that will impact children with special health care needs:

  • Universal and Continuous Coverage – The ACA offers a safety net of consumer protections including: prohibiting  pre-existing condition exclusions – a ban on coverage rescission – offering young adults who are aging out of foster care the opportunity to retain their Medicaid coverage until age 26 – simplified eligibility and enrollment processes for Medicaid and Children’s Health Insurance Program (CHIP) coverage.
  • Adequate Coverage – The ACA has several provisions related to adequacy of coverage, including: the removal of annual and lifetime benefits caps – health homes for Medicaid-enrolled children with chronic conditions – a comprehensive list of “essential health benefits” that will be required in the individual, small group and Exchange plans.
  • Affordable Coverage – Under the ACA, the plans offered through the State Health Exchanges scheduled to open in 2014, will include premium tax credits and cost-sharing subsidies.

Read more about the ACA and it’s impact upon the face of medical care for children with special health care needs at The Catalyst Center, The U.S. Supreme Court Ruling on the Affordable Care Act.

Articles at The White House Blog and The New York Times, Supreme Court Upholds Health Care Law have additional information about the overall impact of the Supreme Court ruling on the ACA.

Stand Up For Health Care: Supreme Court Central

March 20, 2012

From Standupforhealthcare.orgSupreme Court Central

Shortly after President Obama signed the Affordable Care Act into law, anti-health care Republicans filed suit in federal court, trying to block the law from taking effect.

Make no mistake – the law is on solid legal ground. In fact, 19 courts have dismissed challenges to the Affordable Care Act, but that hasn’t stopped these ideologues from dragging out the process in the hopes of scoring political points with their base.

On March 26-28, the Supreme Court will hear arguments on the law, with a ruling expected this summer. We’re confident the Court will uphold the Affordable Care Act, but we can’t take this challenge lightly.

That’s why we’ve created this Supreme Court Update Center. Here, you can learn all about the case – from the key players and the arguments to how lower courts have ruled. And, most importantly, this is where you can find out what you can do to show the Supreme Court that you support our health care rights and want to see them upheld!

Visit the website