Enjoying The Holiday Family Gathering With Your Special Needs Child

December 19, 2012

Holidays can be stressful for anyone, let alone for a child with special needs and his family.

Attending holiday family gatherings can be especially stressful for these children and their families. What should be a time filled with wonder and merriment, can quickly fade to disappointment, perhaps even meltdowns and the need to leave early.

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Tips to a Less Stressful Holiday Gathering

We at Delaware Family Voices understand, and would like to share with you our tips to help you have a less stressful, more fun-filled, holiday family gathering.

Prepare your child in advance

Help reduce potential anxiety by explaining why you are going to the gathering, as well as review expectations while there. Show him photos, tell him social stories, outline the plan of where and with whom you will be. Think about other ways to minimize surprises that might set your child off. Providing details in advance that can calm your child might just be the ticket for a calm, enjoyable gathering.

Prepare the relatives before you arrive

Call in advance of your arrival. Explain your child’s unique differences, including why certain actions may cause her stress. Discuss how to best communicate with your child, as well as what to do if your child appears distressed and you are not immediately available. For example, if your child cannot tolerate scented candles, ask if they may not be lit while your child is present. If your child does not like to be hugged or kissed, ask relatives to wave.

Discuss your child’s differences with the other children

Consider explaining your child’s differences with the other children at the gathering, especially those who may not know him. Be prepared with simple, age appropriate explanations of your child’s disability, abilities, and interests. Also provide ideas that would encourage other children to include your child in their play when appropriate.

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Review where the gathering will be held

Make sure your child will be physically comfortable while at the gathering. If your child requires a wheelchair, review how your child will get around during the gathering and if there are any modifications that can be made. Will the dinner table accommodate her wheelchair? Are there any particular hazards that could easily be removed for the duration of your visit? If needed, discuss any concerns with the hosts prior to your arrival. This will help avoid an unpleasant situation during the gathering.

Avoid food meltdowns

Review the menu with the hosts – then bring alternative choices if your child won’t eat what is being served. Alert the hosts if there are any food issues. Help them to understand why your child might be eating a sandwich or only rolls and mashed potatoes instead of enjoying that tremendous spread they spent hours preparing.

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Don’t fight the fashion fau-pax

If your child has clothing issues or sensitivities, don’t force him to wear that fancy outfit if it means a potential crisis. If a collared shirt is going to cause friction, let it go. If buttons will become a fidgety issue, forgo shirts with them. Letting her dress in comfort might help everyone enjoy the event longer.

If a formal family photo is planned, perhaps bring that button-down shirt or collared dress to be worn only for the few moments it will take to snap the photos. Just be sure to prepare your child before it’s time to put on that special outfit, letting him know that it can removed as soon as the photographer is finished.

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Establish a graceful exit plan before you arrive

Go to the gathering with high spirits, but have a contingency plan for if things get out of hand. An exit plan can be as simple as a phone call or text from a trusted friend or family member. Perhaps a special “call and rescue me” text from you to trigger that person to call, allowing you to graciously bow out of the gathering. If the gathering isn’t too far away, consider taking two cars, allowing some members to remain behind.

Your escape might only need to be a few moments away, after which you and your child can return to the party.  If your child is calmed by yoga or breathing exercises, or other exercise, take him to a quiet room or outside for a break. Consider taking a walk outside if you see your child needs time to unwind.

Bring your own activity supplies kit

If your child finds solace in an iPad or other electronic device, bring it, even if the gathering is considered a “device-free” event. If possible, include a new app or a new game to stimulate your child’s interest for a longer period of time. If loud noises might be an issue, bring noise-cancelling headphones, perhaps playing your child’s favorite calming music. Other kids might prefer coloring or drawing in a quiet room.

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Volunteer to watch the kids

Keeping an eye on the kids might allow you to intercept a potential meltdown before it happens. Keeping on top of possible triggers and redirecting potential situations that could set off your child can prevent an outburst as well as provide for a great opportunity for all the kids to interact in a fun and enjoyable way.

Another alternative is to have a trusted teenager or young adult who knows your child well, to keep an eye on your child and her interaction with the other children.

Stay calm in the face of negativity

It can be hard to remain cool when someone seems to be criticizing your child or questioning your parenting skills. In such situations, it is even more important to stay calm, as oftentimes your child will pick up on your stress. If needed, graciously walk away, take a walk outside, find somebody else to talk with. Just do your best to remove yourself, and your child if involved, from the negativity. Don’t let the situation damper your holiday fun.

Limit your child’s time at the gathering

Determine in advance how long you believe your child will remain comfortable in the social setting. Then, make your plans around this schedule. Also consider informing the hosts prior to your arrival that you might only be able to attend for a limited time. This can help prevent hard feelings if the hosts note your early departure.

Most of all, trust yourself!

You know your child best. If something doesn’t “feel right” then follow your parental instincts. If you need to leave early to prevent a melt-down, then do so, even if others are attempting to convince you otherwise. In the end, do what’s best for you and your family.

Congratulations!

When you get home, take a few minutes to rest and congratulate both yourself and your child on his accomplishment. Consider rewarding your child for her good behavior. Then sit back and enjoy the rest of the holiday!

A heartfelt Thank You goes a long way

Don’t forget to send the hosts a thank you note. This will go far in showing the hosts your appreciation in how they helped accommodate your child as well as help smooth the way for future gatherings.

Do you have any tips you’d like to share with us? Something you have found especially helpful? Please share in the Comments section below.

Happy Holidays to One and All!

From our house to yours, we wish you a very merry, happy, and stress-free holiday season!

Ann     Carrie     Kerry     Peggy     Carol

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Additional resources for handling holiday stress:

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Holiday Gift Ideas for Differently Abled Kids

November 20, 2012

The holiday season is rapidly approaching. Black Friday is right around the corner, and before you know it, it’ll be December. Have you started your Holiday shopping yet? Do you have someone on your shopping list that might be differently abled?

Shopping for a special child, one who is differently abled, can sometimes be a challenge. How do you identify just the right gift? How do you know that toy will meet the child’s special needs?

Perhaps one of these toy guides can help. Each guide is a treasure trove of gift ideas for children who are differently abled, and can help you shop with confidence for a special toy for that special someone.

Toys-R-Us

Toys-R-Us has put together a very comprehensive Toy Guide for Differently Abled Kids that can help guide you to that perfect gift for your someone special.

The Toys-R-Us toy guide helps pinpoint toys to enhance a specific developmental skill. Sort toys within each skill set by age, gender, brand, character theme, and price. Searchable developmental skill categories include – Auditory SkillsCreativity SkillsFine Motor SkillsGross Motor SkillsLanguage SkillsSelf Esteem SkillsSocial Skills SkillsTactile SkillsThinking Skills, and Visual Skills.

Fat Brain Toys

The Fat Brain Toys for Special Needs Children is chock full of gift ideas, including exclusive listings of toys recommended by industry experts.

Not only does Fat Brain provide suggestions by specific diagnosis (brain injury, autism, dyslexia), it also breaks toys down by specific developmental goals (auditory comprehension, writing skills). It’s a veritable A to Z list of toy ideas for special needs. Need a few more gift ideas? Check out Fat Brain’s Awarding Winning Toys list.

Save with these three special offers for Fat Brain shoppers:

  • Free standard shipping on orders over $99.
  • Use Coupon Code NG-7857 to receive an additional 10% off your order, now through the end of November.
  • Register for a $250 give-away now through December 14th.

Beyond Play

Beyond Play offers an extensive selection of products for infants, toddlers, and children in the early elementary grades. Find gift ideas for kids of differing abilities, including fun and educational games as well as specialized products for early intervention and special needs. Find just the right gift with Beyond Play’s different search options, where you can search by key word, by category, or by product feature to find exactly what you want.

Beyond Play works with a team of consultants who are experienced in child development and special needs. Know that you have the insight and experience of childhood development specialists guiding your gift selection.

Fun And Function

Fun and Function‘s mission is to help children achieve their best with skill building toys and therapy equipment for special needs. Find a wide range of toys and products to enhance a wide range of developmental skills.

National Autism Resources

Looking for gift ideas for that someone special who has autism? Check out the Toy and Gift guide for Children and Teens with Autism, Asperger’s, and PDD-NOS, from National Autism Resources.

Parenting.com

Parenting.com has ten inspiring recommendations of fun stuff for kids with Down Syndrome, autism, juvenile arthritis, cerebral palsy and sensory integration. Check out their 10 Toys Great for Kids with Special Needs.

Are you shopping for a differently abled child? Do you have any tips or recommendations you’d like to share? Let us know  in the Comments section below.


An Apple Event for Kids With Autism

November 11, 2012

Do you or someone you know have a child or adolescent on the autism spectrum? Would you like to explore how an Apple touch screen device might benefit someone with autism?

Do you already own an Apple iPad or iPod? Would you like to learn more about applications that could help a child or adolescent with autism?

Are you confused by the number of Apple products and apps that can assist someone with autism? Would you like to talk directly with an expert who can help guide you to what might best fit you and your child’s needs?

Are you a teacher or therapist working with children on the autism spectrum? Would you like to learn more about how Apple devices and apps could benefit your classroom or therapy sessions?

Is your child on the autism spectrum easily overwhelmed by crowds? Wouldn’t it be nice if you could bring your child into the Apple store when it was closed to the general public?

If you answered yes to any of these questions, perhaps we can help!

Join Delaware Family Voices, Autism Delaware and The Apple Store for a Special Event

Delaware Family Voices and Autism Delaware have partnered with the Apple Store in Christiana Mall to create a store event dedicated to children and youth on the Autism Spectrum.

During this special event:

  • The Apple Store will be open exclusively to children with autism and their parents.
  • The store will be closed to the general public for the duration of the event.
  • Only those who have pre-registered for the event will be in the store.
  • Trained Apple Experts will be on hand to answer questions and demonstrate products and apps.
  • You and your child will be able to explore Apple products in a safe and quiet environment, no crowds, minimal noise.

Learn how Apple touch screen devices and apps can benefit children on the autism spectrum, including meeting communication, sequencing, social skills and other autism spectrum needs.

Teachers and therapists are also invited to the event. Explore how Apple devices may be viable tools in the academic environment.

Event Details:

Where: The Apple Store, Christiana Mall, Delaware

When: Tuesday, November 20th

Time: 8:00am-9:30am,

Note: Pre-registration is required.

This is a sensory friendly event. Pre-registration is required and space is limited.  Please contact Delaware Family Voices at 302-221-5362 or familysupport@defv.org to register or to learn more about this event.

Come join us Tuesday, Nov. 20th. Learn how an Apple touch screen device can benefit a child or adolescent on the autism spectrum.

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Apple iPad images from Apple.com.


Autism Night at The HeadQuarters Hair Salon!

October 17, 2012

Looking for a safe, nurturing hair salon that understands cutting the hair of a family member or friend with autism? Live near Wilmington, Delaware? Then The HeadQuarters Hair Salon has a special night just for you.

The last Friday of every month, The HeadQuarters Hair Salon will only service clients with Autism.

Haircuts for people with autism can be traumatic. The wonderful hairstylists at The HeadQuarters Hair Salon are making such haircuts as bearable as possible. During the designated Friday Autism Nights, the salon will only cut hair of clients with autism. There will be no non-ASD clients in the salon, no blow dryers, no background music, no ceiling fans blowing. The salon will also provide picture schedules and fidget toys. Free Wi-Fi is available at the salon so bring your own iPad.

Hair Cut Details:

Kids Cuts Pricing: $15
(under age 12)

Adult Cuts Pricing:
Womens Cut $36 – $42
Mens Cut $18 – $24

The salon has limited availability, and appointments are recommended. Call 302-798-1639, or request an appointment online via Facebook or through The HeadQuarters website, www.hairheadquarters.com.

The salon is located at 1400 Philadelphia Pike, Wilmington Delaware, at the intersection of Silverside Road, between Brandywine 100 and Claymont, DE.

A big thank you to the hairstylists at The HeadQuarters Hair Salon for offering this wonderful service!


Autism Study – Parent Input Request

June 11, 2012

Looking for Delaware parents and guardians of children ages ten and under diagnosed with autism spectrum disorders to participate in a dissertation study.

If your child has been diagnosed in the past 1-5 years with an autism spectrum disorder and you are a resident of the state of Delaware, you are invited to participate in an interview regarding autism. The purpose of this research study is to learn about parent experiences with the identification, diagnosis, and support of their child’s autism.

Participants will be interviewed for approximately one hour. All interviews will be confidential and your name will not be included in the final paper. This project request has come to us from the Healthy Delawareans with Disabilities Center for Disabilities Studies, University of Delaware

For more information, please contact Tracy Mann at TLM@udel.edu or (302) 540-4278.


Statewide Needs Assessment Survey: Autism Spectrum Disorders

November 23, 2011

The University of Delaware Center for Disabilities Studies is conducting a statewide needs assessment survey for families and individuals with Autism Spectrum Disorders.

We hope to get parents/guardians and individuals to complete a survey telling us what they think of the health and education services they receive and to get their points of view about what impacts on their child’s life or their life. This survey, along with upcoming listening sessions, will help to improve services and programs for individuals with Autism Spectrum Disorders across Delaware.

Your input will be completely anonymous. The entire survey should take about 15 minutes to complete.

In addition, I would also like to invite you to join one of our Listening Sessions around the state.  In January and February of 2012, we will be coming to your area to listen to your stories. We will provide dinner and a stipend to our participants.

If you are interested in participating in a listening session in Newark, Middletown, Dover or Georgetown or if you have any questions about the survey, please feel free to contact Annalisa Ekbladh at 302-831-0626 or by email atannalisa@udel.edu.   Thank you for your help in this study.

The anonymous link for families of school age children with autism (ages 3 to 21) is:

English:  http://www.surveymonkey.com/s/autism_youth

Spanish: http://www.surveymonkey.com/s/autismo_joven

The anonymous link for families of adult children with autism is:

English: http://www.surveymonkey.com/s/autism_adult

Spanish: http://www.surveymonkey.com/s/autismo_adulto

The anonymous link for adults with autism (who wish to fill out the survey themselves) is:

English only: http://www.surveymonkey.com/s/autism_adult-individual