Upcoming Parent to Parent Workshop: Support Parent Training

September 23, 2013

Would you like to become a trained Support Parent? Then attend Delaware Family Voices’ upcoming Parent to Parent Workshops.

What is The Parent to Parent Workshop? 

The Parent to Parent workshop is designed to train parents of special needs children to become a Support Parent. Once a parent has completed the Support Parent training, he/she can then be matched with parents of children with similar special health care needs, disabilities or mental health issues, providing them with much needed emotional support.

Support for Disabilities

Parent to Parent Workshop Details

The Parent to Parent Workshop is a two part training program dedicated to providing potential Support Parents with the training and information they need to be effective Support Parents to Referred Parents. The following workshop dates are open for enrollment:

Parent to Parent Workshop Part 1:

Monday, September 30th
9:00 am to 2:00 pm

Parent to Parent Workshop Part 2:

Thursday, October 3rd
9:00 am to 12:00 pm

Workshop Locations:

 Delaware Family Voices office
222 Philadelphia Pike, Suite 11
Wilmington DE 19809

Note: You do need to attend both Part 1 and Part 2 to complete the Support Parent training program.

Please RSVP by Thursday, September 26th to Delaware Family Voices. Questions? Call Erica Schetter at 877-235-3588 or email her at p2p@defv.org.

Child care reimbursement is available on request and a light lunch will be provided.

For additional information, refer to the flyer, Parent to Parent Workshop.

What is Parent to Parent?

Parent to Parent USA is a nation-wide organization dedicated to providing emotional and informational support to families of children with special needs. Delaware Family Voices is the approved Parent to Parent organizations for the state of Delaware. Learn more about the Parent to Parent program at P2PUSA.

Parent to Parent

We look forward to seeing you at the Parent to Parent Workshop. Please contact Erica if you have any questions.

++++++++++++++++++++++++++++++++++++++++++++++++++

Delaware Family Voices is a 501 C3 Non-profit organization. Consider Donating to our organization and help support Delaware families in need.

++++++++++++++++++++++++++++++++++++++++++++++++++

Advertisements

Meet Delaware Family Voices Staff Member Erica Schetter

August 16, 2013

Delaware Family Voices is pleased to announce the addition of Erica Schetter to the Delaware Family Voices family.

Welcome Erica Schetter!

As Project Administrator, Erica’s role is to advocate for families of children with healthcare needs and to help them navigate the healthcare system.

Delaware Family Voices StaffErica is a recent graduate of University of Delaware with a B.S. in Human Services. Through her volunteer work with the Special Olympics and the Scleroderma Foundation, she discovered her passion for working with families and children with special healthcare needs. She is eager to learn and absorb from the professionals she works alongside. With that valuable knowledge, Erica will help families discover new resources while empowering them to utilize those resources.

You can reach Erica directly at (302) 669-3033, extension 802, or at her email, p2p@defv.org.

Join us in welcoming Erica on board!

++++++++++++++++++++++++++++++++++++++++++++++++++

Delaware Family Voices is a 501 C3 Non-profit organization. Consider Donating to our organization and help support Delaware families in need.

++++++++++++++++++++++++++++++++++++++++++++++++++


Next Parent To Parent Workshop Is Almost Here!

April 30, 2013

Are you the parent of a child with diabetes, a chronic respiratory condition, or a chronic cardiac condition? Would you like to help other families with similar chronic medical issues?

Consider training to become a Support Parent and be a part of a network of families supporting families. Learn how to effectively share your knowledge and experience to help support other families who are dealing with similar situations.

Help Others – Become A Support Parent!

Delaware Family Voices (DEFV) is the only organization in Delaware approved by Parent to Parent USA  to participate in the national Parent to Parent program. Through Parent to Parent Workshops, we provide the training and skills necessary to become a Support Parent.

AprilP2PW

Once trained, Support Parents are then matched with families with similar circumstances. Support Parents help these families by providing them with emotional support and guidance as they navigate their child’s diagnosis. Learn more about the program through the following three resources: Introducing The Delaware Parent Partners ProgramHelp Us Help Parents Become A Parent Partner, and Parent to Parent USA.

Don’t Miss Our Next Parent to Parent Workshop!

Delaware Family Voices’s next Parent To Parent Workshop is just around the corner. Register now and learn more about the Parent To Parent program and how you can become a Support Parent.

When: Tuesday, May 7th
Time:  9am – 2pm
Where: Easter Seals Building- 61 Corporate Circle New Castle, DE 19720

A light lunch will be provided and child care reimbursement is available.

Kindly RSVP by May 3rd  to Ann Phillips at (302) 221-5360 or annp@defv.org. Class size is limited.

Please call Delaware Family Voices at (302) 221-5360 with any questions.

Hope to see you at the workshop.

++++++++++++++++++++++++++++++++++++++++++++++++++

Delaware Family Voices is a 501 C3 Non-profit organization. Consider donating to our organization via United Way #12691.

++++++++++++++++++++++++++++++++++++++++++++++++++

Image from Parent to Parent USA.


Help Us Help Parents – Become A Parent Partner

February 21, 2013

Delaware Family Voices provides information to families of children with special health care needs. We are parents just like you who are raising our own children with special healthcare needs. Delaware Family Voices also supports our families and the professionals who serve our families by offering workshops and training sessions.

Parent Partners Delaware

Delaware Family Voices is currently working on a project to assess the unmet needs of families of children with chronic health conditions in Delaware. Our goal is to identify resources for these families, and to increase the number and availability of community organizations and systems to better serve these families. To fulfill our work under this grant, we have created the Parent Partners Program.

Who Are Parent Partners?

Parent Partners are the parents of a child or youth with one of the following medical conditions:

– Any type of diabetes

– A chronic respiratory condition

– A chronic cardiac condition

The child may have additional co-existing conditions, but we are initially focusing on these three conditions as representative of all chronic conditions.

Support groups for Kids with disabilities

What Does A Parent Partner Do?

A Parent Partner will have several responsibilities, including:

Complete the training program to become a Support Parent in the Parent To Parent program. More details about the program are found below and at the Parent To Parent USA website.

Distribute materials about the program to medical offices and other places where families of children with chronic medical conditions are likely to be.

Support the work of the Parent to Parent Coordinator by promoting the Parent to Parent program and training for Parent to Parent volunteers.

Help collect information from other families about the unmet needs of their children with chronic health conditions.

Help identify the availability of resources for families.

Provide recommendations to service providers, policy makers, and others on strategies to address these unmet needs.

Parent Partners who have full participation in the Parent To Parent program may receive a stipend of up to $250 plus travel expenses. Parent Partners who participate at a lower level may receive reimbursement for travel expenses.

Parent  To Parent Support Group

How Can You Help?

By becoming a Parent Partner! We would love to have you join us as a Parent Partner as we implement this important project.

Delaware Family Voices is in need of Parent Partners to represent all three Delaware counties. If you are interested, and would like to learn more about either the Parent Partner program or Parent To Parent, please contact Ann Phillips, Executive Director of Delaware Family Voices at (302) 221- 5360.

++++++++++++++++++++++++++++++++++++++++++++++++++

What is The Parent To Parent Program?

Delaware Family Voices hosts the Delaware chapter of the Parent to Parent USA national program, which is dedicated to supporting families of children who have a special health care need, disability, or mental health issue. Through the use of one-to-one “matches,” the program brings together experienced Support Parents and parents of newly diagnosed children (Referred Parents). Support Parents provide support and guidance to the Referred Parents as they navigating their way through their child’s diagnosis and treatment plan.

Support Parents and Referred Parents are matched as closely as possible by the child’s diagnosis and other factors to ensure the best possible advise and help are provided to the Referred Parent. A Support Parent’s goal is to help a Referred Parent with adjusting to the new diagnosis and the family’s “new normal.” Support Parents provide a listening ear and emotional support as well as a means of locating relevant resources in a way that only a parent who “has been there” can provide. For additional information about the Parent To Parent program, please refer to the Parent To Parent website.

Parent To Parent  program

++++++++++++++++++++++++++++++++++++++++++++++++++

Delaware Family Voices is a 501 C3 Non-profit organization. Consider donating to our organization via United Way #12691.

++++++++++++++++++++++++++++++++++++++++++++++++++
Images from Parent To Parent USA.


Chronic Conditions Focus Group – Parent Opportunity

January 13, 2013

Your Voice Matters and Delaware Family Voices wants to hear from you.

Are you the parent of a child with:

  • Diabetes
  • A Chronic Respiratory Condition
  • A Chronic Cardiac Condition

Family Portrait - Montreal 1963

If so, you are invited to attend a Focus Group Meeting to share your knowledge and experiences. Your voice can help us improve care and services for other families throughout Delaware.

Focus Group Details:

When: Two focus group sessions will be offered:

Tuesday, January 29, 6:30 –8:00 p.m.

Wednesday, January 30, 12:30 – 2:0 p.m.

Note – You would only attend one of the two focus groups, not both.

Where:  Easter Seals Building

61 Corporate Circle,

New Castle, DE  19720,

Conference Room A

You will receive a stipend for your time and lunch will be served.

To participate in one of these focus groups, you must pre-register by January 15 and have a child with one of the 3 conditions listed above.

To sign up or for more information, please contact Kerry Doyle-Shannon at p2p@defv.org or (302) 221 5361.

About Delaware Family Voices:

Families and caregivers often struggle to find the necessary services for their children with chronic and complex needs. It can be especially challenging for the families of children with special healthcare needs and disabilities. Our Family Leader Liaisons and Resource Families are here to help you navigate the healthcare system, access resources and services and find the answers to your questions. We offer the supports you need, helping save you time and frustration.

DEFVLogo

Do you have additional questions about either the focus groups, or Delaware Family Voices in general? Please contact us at (302) 221-5361.

+++++++++++++++++++++++++++++++++++++++++
Family Portrait – Montreal 1963 (Photo credit: Mikey G Ottawa)


Introducing The Delaware Parent Partners Program

September 10, 2012

Delaware Family Voices (DEFV) is dedicated to helping families of children with chronic medical conditions. As an ongoing part of DEFV’s effort to support these families, through a grant awarded to the Department of Public Health, and in partnership with Family SHADE, DEFV has created the Parent Partners Program.

What is the Parent Partners Program?

The Parent Partners Program is designed to identify and access non-medical resources to further assist families with chronically ill children. Resources from emotional support to insurance assistance to recreational opportunities, and more, can make major improvements in the challenging lives of these families.

DEFV supports families of children with special health care needs to become informed, experienced, self-sufficient advocates for their children and themselves.

DEFV also stresses a family-centered approach to help families better cope with their children’s health condition. The Parent Partners Program is an extension of this approach. The program’s primary goals include:

  • Assist DEFV in assessing the unmet, non-medical needs of Delaware families of children with chronic health conditions.
  • Identify and access resources for these families.
  • Make valuable resources available to as many families as possible.

Through this program, DEFV and trained Parent Partners will work together to identify resources for these families as well as work within the local communities to develop specific organizations and systems to better serve the families.

Who are Parent Partners?

Parent Partners are parents of a child or youth with special health care needs (CYSHCN), and in particular, parents of children with any type of diabetes, a chronic respiratory condition or a chronic cardiac condition. The child may have additional co-existing conditions, but the initial focus will be with these three chronic conditions. They will serve as representative of the much larger, diverse group of CYSHCN.

What are the roles of a Parent Partner?

Parent Partners will:

  • Complete the Support Parents training in the Parent to Parent** training program offered by DEFV.
  • Complete a survey on the unmet non-medical needs of children with special health care needs.
  • Assist DEFV in the distribution of the survey to physicians and to other parents of CYSHCN.
  • Participate in at least one focus group discussion.
  • Assist DEFV in the collection of information from families on the unmet needs of CYSHCN and the availability of resources for these families.
  • Assist DEFV in developing recommendations to address these unmet needs in preparation for presenting to local service providers, policy makers and others.

Parent Partners may receive a stipend as well as travel expenses for their participation in the Parent Partner program.

Who can be a Parent Partner?

Do you live in Delaware and have a child with one of the following chronic medical conditions?

  • Diabetes, any type
  • Chronic respiratory conditions
  • Chronic cardiac conditions

If so, would you consider becoming a Parent Partner, and help DEFV support other Delaware families with children with chronic medical conditions?

If you, or someone you know, might be interested in becoming a Parent Partner, please contact Kerry Doyle-Shannon, the Parent to Parent Coordinator for Delaware Family Voices, at p2p@defv.org, or #302-221-5361.

**Additional details for the Parent to Parent Program: Parent to Parent is a national program that provides emotional and informational support to families of children who have special needs, most notably by matching parents seeking support with an experienced, trained “Support Parent.” DEFV is the Delaware branch of the national Parent to Parent program.

++++++++++++++++++++++++++++++++++++
Images from the Parent-To-Parent website.


Delaware Family Voices Chronic Conditions Survey – Your Input Needed

September 6, 2012

Do you live in Delaware and have a child with one of the following chronic medical conditions?

  • Diabetes, any type
  • Chronic respiratory conditions
  • Chronic cardiac conditions

If so, Delaware Family Voices needs your input. We would greatly appreciate you taking the time to complete the Delaware Family Voices Chronic Conditions Survey and help us learn more about what you need to better manage your child’s condition.

Survey Specifics:

The survey’s objective is to assist Delaware Family Voices to identify the unmet needs of Delaware families with children who have chronic cardiac or respiratory conditions, or diabetes.  The survey outcome will be a roadmap of currently available services, what services might be lacking, and how we can help families find and access the services they need.

Additionally, we will make recommendations to address these unmet needs to service providers, policy makers, and others, as well as advocate for and monitor the implementation of these same recommendations.

Lastly, though our survey is directed towards three specific chronic conditions, our objective is to represent all children with any chronic health condition. Any recommendations we make will also have the intentions of assisting any child with a chronic health condition.

Will you please take a moment to complete the Delaware Family Voices Chronic Conditions Survey?

Note – This survey is anonymous. Any response you provide are in complete confidence.

Thank you!

Please contact Kerry Doyle-Shannon, Delaware Family Voices Parent to Parent Coordinator, at p2p@defv.org or #302-221-5361 if you have any questions.